Curing Neurofibromatosis (a tumor disorder), for this Three Year Old

Meet my little friend Jacqueline. Isn’t she adorable? She has a genetic tumor disorder called neurofibromatosis (also referred to as “NF”) and was recently diagnosed with myopic glioma, tumors that grow inside the brain. Jacqueline also has a tumor on her tongue and on the back of her head. Her mother, JoAnne Pastel, has been a dear friend of mine for many years and together we co-created Bur Bur and Friends®, a cast of characters who educate kids about differences and healthy living. JoAnne and I have co-authored 4 children’s books and Jacqueline  inspired creation of a new character we call Nina.

Jacqueline is sweet and funny and intelligent and beautiful. She lights up a room when she walks in the door and her infectious laugh is delightful. She is like a daughter to me and we are on a race to create awareness about this disorder and to find a cure!

I am humbly asking for your help to donate and/or share Jacqueline’s story so we can create awareness about neurofibromatosis. The link below leads to more information and includes an account by JoAnne from a mom’s point of view. Today is Give to the Max Day in Minnesota. It is a movement to encourage charitable giving. Thank you for your support.


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